States are failing to promote and improve access to the Breast & Cervical Cancer Treatment Program, costing thousands
of women their lives...
From the Wall Street Journal
September 13, 2007, 8:13 am
A Breast Cancer Death, Tangled
in Bureaucracy
Posted by Jacob Goldstein
Shirley Loewe died of breast cancer in June. In the four years after she
was diagnosed, she was “denied assistance or care at least six times, for reasons that ranged from not being poor enough to
not being sick enough,” the WSJ reports.
Loewe (pictured with her daughter) was a hairdresser in Longview, Texas. She
didn’t have health insurance and her $15,000-a-year income was too high to qualify for Medicaid in the state. A little known
federal law, the Breast and Cervical Cancer Prevention and Treatment Act, allows women to be covered by Medicaid even if they
don’t otherwise meet all of its eligibility criteria.
But in 2003, when Loewe was diagnosed, Texas was one of more
than 20 states where the law only applied to women initially diagnosed at clinics that get funding from a federal cancer-detection
program. Because she was diagnosed at a medical center that didn’t qualify, rather than a different clinic less than a half
mile away that did, Loewe was ineligible. She wound up cutting back her work hours, which allowed her to qualify for charity
care but forced her to move out of her apartment. Texas has since changed its rules so that it doesn’t matter where a woman
is diagnosed. But similar rules still apply in 21 states.
Her odds of surviving wouldn’t have been good even if she
had qualified for coverage under the law. She had inflammatory breast cancer, a rare and often fatal form of the disease,
and her tumor had grown to four inches in diameter by the time she was diagnosed. But, the story suggests, if she had been
covered by Medicaid from the time she was diagnosed, she might have received care more promptly, and her life might have been
less fraught with worries over money and bureaucracy.
“People die every day waiting for the system to catch up,” a
social worker told Loewe’s daughter. “Why should your mother be any different?”
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