Northern Ohio Breast Cancer Coalition Fund
HomeAbout UsBecoming a MemberProgramsCalendar of EventsVolunteerNewsLinks & ResourcesDonateBreast Cancer Fund of OhioLend A Helping HandAdvocacy

Welcome to the Northern Ohio Breast Cancer Coalition...

Northern Ohio Breast Cancer Coalition Fund, a member of the National Breast Cancer Coalition, is a grassroots advocacy organization created in 2000 by breast cancer survivors to promote and fund research, increase access to quality health care and increase the influence of survivors in all aspects of eradicating breast cancer. In addition to advocacy, we also provide education, referral services and financial assistance to breast cancer patients. We serve all of northern Ohio.


Bras Across the Cuyahoga - 5K and 1K Run/Walk - July 6, 2008  Register Now!

BrasCleveScene.gif

Support This Site




Get Involved! Join NOBCCF

Email Newsletter icon, E-mail Newsletter icon, Email List icon, E-mail List icon Sign up for our Email Newsletter

Breast Cancer Blog
 
We'll make regular posts in our online breast blog discussing the latest news for breast cancer survivors in Ohio...

Archive Newer | Older

Tuesday, December 18, 2007

Addressing Care Gap in Underserved Women Not Easy

The Mayo Clinic reported on a study of its program to reduce breast cancer care disparities by improving the time from diagnosis to treatment.  (Interestingly enough, this program reads like an exact replica of NOBCCF's Lend A Helping Hand Program, but I digress...)  Reducing the time from diagnosis to initiation of treatment greatly increases survival.  The only difference I have with the conclusion is that such a program can work even better when its managed with a community based program that can assist patients regardless of where they're being treated.  EHS

In an effort to fill a significant gap in the breast care of underserved women, physicians and nurses at Mayo Clinic’s campus in Jacksonville, Fla., developed a program, still ongoing, to help overcome barriers that prevent women from receiving timely care after an abnormal mammogram. 

From 2001 through 2006, Mayo Clinic’s Multidisciplinary Breast Clinic offered free diagnosis services to 447 women who had been screened for breast cancer by their county health departments in Northeast Florida. The goal was to substantially reduce what can be a long delay between an abnormal screening mammogram and diagnosis — which they succeeded in doing — and thus improve outcomes for the 38 women found to have cancer and reduce distress in many others.

Arriving at a correct diagnosis was relatively easy; overcoming the barriers to health care that many women have was not, says the lead author and researcher presenting an analysis of the program at the annual San Antonio Breast Cancer Symposium meeting.

For example, many women participating in the program had no address, or just a temporary one, such as a battered women’s shelter, says Frances M. Palmieri, M.S.N., clinical manager of the Multidisciplinary Breast Clinic. Few had telephones, public transportation to the clinic was nonexistent, and some women were reluctant to come in any case, Palmieri says. Others could not take time away from child care or work to come to the clinic for evaluation.

“This is a snapshot of what happens nationally to financially disadvantaged, medically uninsured women,” she says. “We all need to understand and try to overcome the challenges and barriers to patient care that exist for many.”

Among other things, the Breast Clinic worked with local charities to provide clothing to those who needed it, and worked with the city of Jacksonville to have the public bus service stop at the clinic. They assigned a research nurse, Judith Smith, to help find and bring women into the clinic, which quickly emerged into a full-time pursuit.

“It is important that women undergo appropriate diagnostic studies as soon as they receive an abnormal breast cancer screening, but it takes much more coordination than we ever expected,” Palmieri says.

Several programs exist nationally to provide free breast cancer screening mammograms to underserved women, but there is no unified system for providing diagnostic services when abnormalities on the mammograms are detected. As a result, in late 2000, Mayo Clinic in Jacksonville and Betty Anne Mincey, M.D., who was at Mayo at the time, instituted a program to address this gap in care. The Breast Clinic worked with health departments in four counties surrounding the institution (Nassau, Duval, St. Johns and Clay), so that women with abnormal mammograms would be referred to Mayo Clinic for a diagnosis. A team of radiologists, led by Elizabeth DePeri, M.D., current principal investigator of the study, worked to provide flexible procedure times and overcome system barriers to offer a timely review of screening films and a rapid diagnosis.

Of the 447 women enrolled through 2006, 65 percent were white, 21 percent were black, and 11 percent were Hispanic. The mean age was 49.7 years. Physicians performed 893 procedures (mostly diagnostic mammograms and ultrasound tests) and found that 90 percent of the abnormalities detected on initial mammograms were benign. They also diagnosed 38 cancers, of which 76 percent were invasive carcinoma that needed immediate treatment. In most cases, county health departments provided that treatment, but some patients were cared for at Mayo Clinic. No data is available yet on outcomes.

The clinic succeeded in reducing what had been a typical delay of several months down to an average of 36 days, well below the 60-day benchmark established by the U.S. Centers for Disease Control and Prevention (CDC), Palmieri says.

“This has been a real education for all of us, but our study demonstrates that timely diagnostic resolution of abnormal mammograms in low socioeconomic status women is achievable with a coordinated, collaborative program between an academic medical center and public health departments,” she says.

 

18 dec 07 @ 2:43 pm

Friday, December 14, 2007

SABCS Highlights 14 dec 07 @ 8:25 pm

Thursday, December 13, 2007

New Web Site for Patients With Brain Mets
 
Brain metastases are a growing problem in metastatic breast cancer, with incidence only increasing as systemic therapies prolong women's lives.  At least 15% of all women with metastatic disease will face brain and CNS metastases, and the number rises to 25-40% in women with HER2-positive metastatic disease. This is the manifestation of advanced disease that women tell us they fear the most, yet their treatment options are limited.  Until very recently, few resources have been devoted to research of this devastating problem, and no dedicated resource offered help to these women and their families.
 
Thanks to National Breast Cancer Coalition members and ProjectLEAD graduates Musa Mayer and Helen Schiff, and Dr. Patricia Steeg of the National Cancer Institute for their excellent work developing a new web resource for breast cancer patients with brain metastasis.
 
This website is part of their advocacy work for a Center of Excellence grant funded by the Department of Defense Breast Cancer Research Program that is focusing entirely on brain mets.
 
They intend this website to offer medically accurate and up-to-date information grounded in research and reviewed by our physicians. Oncologist Dr. Andrew Seidman, of Memorial Sloan Kettering Cancer Center, has been particularly helpful, contributing an in-depth interview of his perspective on treating brain metastases.

The heart of the website has really come from women living with brain metastases who responded to a questionnaire Musa sent out on the BCMETS mailing list a few months ago, who devoted themselves to writing about their experiences and feelings, and then generously allowed them to use their words and stories, so that through their words they could reach out to other women and their families who are facing this diagnosis.
 
Today is the official launch of the BRAINMETSBC.ORG website at the 2007 San Antonio Breast Cancer Symposium, and Helen and Musa wanted all of you to be among the first to know.
 
Thanks to Musa, Helen and Dr. Steeg for all their hard work in making a valuable resource available to breast cancer patients.
 
13 dec 07 @ 1:38 pm

Tuesday, December 11, 2007

San Antonio Breast Cancer Symposium Begins Thursday
The San Antonio Breast Cancer Symposium, the largest breast cancer conference in the US, will begin Thursday, Dec. 13 and will run through Sunday, Dec. 16, 2007.
 
The conference will feature poster sessions, symposia and lectures from world renowned researchers discussing the latest breast cancer research.
 
To view abstracts for research being presented at this year's conference follow this link:
 
 
 
 
Follow this link to register for the Alamo Breast Cancer Foundation's "Hot Topics" Mentor Sessions webcast.  Each evening of the SABCS, researchers and clinicians meet and discuss w/ survivors the research presented that day.  A great way to get a quick summary of important news.  Its free, but registration is required.
 
 
11 dec 07 @ 3:35 pm


Archive Newer | Older
Directions to our office

Enter your starting address:
Street Address: 
City: 
State: 
ZIP Code: 

Please get in touch to offer comments and join our mailing list.