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Here is information about our organization, including our mission statement.
Organization Purpose
The purpose of this organization is to empower breast cancer survivors and concerned others to eradicate breast cancer
by focusing on research, improving access to health care and promoting the influence of breast cancer survivors in all
aspects of breast cancer decision-making.
Our Mission
The Northern Ohio Breast Cancer Coalition Fund (NOBCCF) is a member of the National Breast Cancer
Coalition (NBCC). We are an organization formed and led by breast cancer survivors. Our goal is to eradicate breast cancer
by leading the effort to focus our communities, research institutions, the news media and consumer advocates on breast cancer.
Like NBCC, the Northern Ohio Breast Cancer Coalition Fund works to inform, train and direct breast cancer patients and
concerned others in knowledgeable and effective patient and research advocacy efforts at all levels. We recognize that the
process of curing and eradicating breast cancer involves access to quality health care, patient education and support, improved
funding for research as well as consumer awareness. We have an education and advocacy network in the northern Ohio area and
work to educate and assist women living with breast cancer to achieve the following goals:
- To promote research through increased funding, improved research and recruitment and training of scientists
- To improve access to high-quality screening, diagnosis, treatment and care for all women, particularly the
underserved and uninsured, through change in the regulation and delivery of breast health care
- To facilitate the involvement and influence of those living with breast cancer in
the northern Ohio area in improving access to quality health care, support services in the community as well as involvement
in aspects of clinical trial design, including access to clinical trials
History & Accomplishments
Elizabeth Schulte, a 9-year breast cancer survivor, and Dr. David Weng, of the Cleveland Clinic Foundation, formed the
Northern Ohio Breast Cancer Coalition and Fund in the spring of 2000. Since that time it has expanded to a membership of approximately
400 survivors and concerned others with full-time staff, and an advisory panel of medical, health care and business professionals
serving northern Ohio. The group is one of over 70,000 members of the National Breast Cancer Coalition, headquartered in Washington
D.C. Following is a list of our activities and accomplishments
Research - We raise
$150 million every year for breast cancer research
- NOBCC members work with NBCC affiliates across Ohio and the
U.S. to lobby each year for funding of cutting edge research the Dept. of Defense Breast Cancer Research Program (BCRP), National
Cancer Institute and other government agencies. Since the beginning of the BCRP, Ohio researchers have received over $70 million
in breast cancer research and professional development grants.
Breast & Cervical Cancer Treatment
Program
NOBCCF's advocacy network helped enact the Breast & Cervical Cancer Prevention &
Treatment Act in Congress in 2000, providing low income, uninsured women with access to Medicaid coverage during treatment
and follow up care. In 2001, Ohio members led the effort resulting in Ohio's adoption of the Treatment Program. Since it began,
it has provided treatment to nearly 400 uninsured Ohio breast & cervical cancer patients.
Through its work
with breast cancer researcher, Dr. Susan Love, NOBCCF was instrumental in bringing the latest breast cancer screening method,
ductal lavage (a "Pap test" for breast cancer), to Cleveland. This collaboration resulted in funding for innovative
research in early detection of breast cancer
Through the National Breast Cancer Coalition, a multi-million dollar
Breast Cancer & Environmental Research Program has been established at the National Institutes of Environmental Health
Sciences. This program will provide grants for research into environmental factors affecting breast cancer, leading to understanding
causes and how to prevent this disease. A recipient of these grants is the University of Cincinnati.
Education
Breast Cancer Symposium - Educates breast cancer survivors through presentation of breast cancer symposia
for the last six years in Cleveland with a panel of top physicians to discuss new innovations in breast cancer diagnosis and
treatment. The symposium, which offers continuing education credits and encourages collaboration between local researchers,
attracts professionals and survivors.
Peer to Peer Counseling - NOBCCF also provides education to newly
diagnosed breast cancer patients through its Quality Care Initiative, helping them understand their diagnosis, the latest
research and treatment options to discuss with their doctor.
Access & Support
Established
"Lend A Helping Hand", a patient advocacy and emergency assistance program for patients undergoing breast cancer
treatment. This program includes a local hotline to provide information about free breast cancer screening and access to treatment.
It also provides referrals, crisis counseling and care navigation to women and men diagnosed with breast cancer. Since 2001,
LHH served over 400 patients in northeast Ohio, providing over $150,000.00 in financial assistance.
Breast
Cancer Fund of Ohio
NOBCCF collaborated with other breast cancer organizations from around Ohio to enact
legislation creating Ohio's Breast Cancer Awareness License Plate with proceeds distributed by the Breast Cancer Fund of Ohio.
To date, over $80,000 has been granted to Ohio hospitals and cancer organizations to provide emergency financial
assistance to breast cancer patients. In late 2008, NOBCCF was pleased to complete its effort to assist in the launch and
initial development of BCFO. While NOBCCF no longer participates in BCFO governance and management, we are pleased with
the progress they've made and support their ongoing efforts to assist breast cancer patients in Ohio. Visit their web
site and learn how you can purchase the Oho Breast Cancer Awareness License Plate.
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*Elizabeth Schulte, NOBCCF Executive Director *Andrea Bernard, Hinckley, OH Halle Moore, MD Cleveland Clinic Taussig Cancer Center Frances Floriano Goins, JD, Ulmer & Berne, LLP (ex officio) |
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Margarita Concepcion, Rural Opportunities |
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Board of Trustees Site (Members Only)
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Dr. Paula Silverman, University Hospitals, Ireland Cancer Center
Dr. Joseph Crowe, Cleveland Clinic Foundation
Rachel Kirk, Sisters Network NE Ohio
Rene Barrat Gordon, LISW Cleveland Clinic Foundation
Kim Day, LISW University Hospitals - Ireland Cancer Center
Dr. Julian Kim, UHHS - Ireland Cancer Center
Dr. Barbara Williams - Parma Hospital
Robert Gillespie, CPA
Geri Blair - Minority Women With Breast Cancer Uniting
Mirta Karlak - Bedford Heights, OH
J J Jursik - Lesbians With Cancer Support Group
Corporate Financial Information
Following are NOBCCF's financial reports and IRS documents.
Please feel free to contact us for more information.
IRS Form 990
The 2007 Form 990
click here to download file
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Join NOBCCF's Board of Trustees
NOBCCF encourages breast cancer survivors and concerned others to participate by becoming a member of our Board of Trustees.
We meet four times per year. If you are interested in applying, please download and complete the application at the link below
and mail, fax or email it to us.
Download NOBCCF Board of Trustees Application
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